Friday, March 25, 2011

Asthma On My Mind




Prednisolone::Singulair::Pulmicort::Albuterol::Dexamethasone::Corticosteroids::Steroids

What language is this?
It is the language that we speak when dealing with Spencer's asthma.

Did you know that approximately 1 in every 10 kids in the U.S.A. have asthma?
That is roughly 7 million kids (one site said 9 million) in our country alone.
Did you know that the number of children with asthma has doubled since the early 1980s, and that it is the number 1 cause for school absences and like the 3rd reason for ER visits?
What is wrong here?
Seriously.


Spencer started having asthma attacks when he was 3.  He has had a lot of meds since then.  The medications treat the symptons, but not the disease.  The doctors always want to keep him on a preventative medicine, Singulair.  I feel like it is a double-edged sword.  Don't take it and take the chance of having to take the other stuff to fix the possible asthma attack, vs. take it and have that medicine in your body all the time.  And then you always have the possible side effects.  Have you ever paid attention to those?  The following possible side effects are from 5 or 6 different asthma medications, some of which Spencer has used/still uses when needed:

cough, sore throat, nosebleed, nausea, headache, vomiting, runny nose, diarrhea, stuffy nose, stomach pain and sores inside the mouth, heartburn, joint pain, back pain, muscle pain, loss of appetite, dry throat, difficult or painful urination, nose irritation, and painful menstrual periods, unpleasant taste, hoarseness, itching, skin rash, dry mouth, mouth irritation, sweating, throat irritation, lightheadedness, dizziness, insomnia, sleep problems, muscle cramps, itching, voice changes, anxiety, aggressive behavior, depression, sleep walking, tremors, agitation,  pain in the face, fullness in the face, and suicidal thoughts (that last one is one of the possible side effects of Singulair...hmmm)


Did you read them all? 
CRAZY!
And those are just the immediate ones.  Who knows what the long term effects are.

I'm not anti-medication, medicine definitely has it's time and place, but I just don't like having to depend on it or give it to my son so much!   




Mainly I want to ask,
1. Isn't there a better way?
2. The medicine treats his symptons, but what can treat the disease? 
(And if you are wondering if asthma is really a disease, it is.  It is a chronic lung disease.)

After last night, another night of worrying and listening to Spencer's struggled breathing, and issuing albuterol and pulmicort through a nebulizer, and eventually giving him the prednisolone (steroid), I came to the computer today to ask those questions. 


I have been thinking a lot about the role that food plays in one's health and took my search in that direction.  We definitely already have our fill on medicinal options.  What are some other options? 

Somehow I came across Dr. Kenneth Bock M.D. and his books
Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The Groundbreaking Program for the 4-A Disorders
Click on the link below, not the picture, to see the book on Amazon.
Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies
Natural Relief for Your Child's Asthma: A Guide to Controlling Symptoms & Reducing Your Child's Dependence on Drugs
Again, click on the link below, not the picture to "look inside" the book on Amazon.

Natural Relief for Your Child's Asthma: A Guide to Controlling Symptoms & Reducing Your Child's Dependence on Drugs

I took the invitation to "click to look inside" on both books and spent at least a couple hours (with some interruptions) reading through them and also finding out more about Dr. Bock himself through youtube video lectures and other sites.  I'm thinking about ordering the books so that I can read them in their entirety and then form a more educated opinion about it all.
Has anyone reading this post ever heard of Dr. Bock?  

I also came across this.  I haven't read the entire thing yet (it's long), but what I have read has been very good and inspiring.  


These sources talk a lot about taking control of, and healing, our body through the food we eat (as well as other things).  What I have read of them makes so much sense to me.  Reading through them my thoughts were, Well, duh!  Of course if you eat crap then crappy things are going to happen to your body.  Of course we can help our bodies by eating better.  We are what we eat, after all.
I think that and then grab a handful of chocolate chips and down them.
Hypocritical?  I'm not trying to be.  I just need a little lot more self-discipline and self-mastery.
James E. Faust said that self-mastery is the ultimate test of our character.  I believe that includes our diet and nutrition.   Think of the blessings promised us if we follow the Word of Wisdom.


In a waiting room in the hospital last Tuesday.  We were there for an orthopedic surgeon to look at how Spencer's finger has healed, not for an asthma problem.  His finger has healed fine, thank goodness.


So what does all of this - diet and nutrition, and self-discipline and self-mastery - have to do with Spencer and his asthma?   
 Well I've been thinking about putting him on a gluten (the protein in wheat)-free and casein (the protein in dairy)-free diet to see if that will help him.  I have read about cases that this diet has helped asthmatics.  It just sounds so involved and hard and all-consuming to think of meals and snack ideas and to stick with it.  It would take a lot of self-discipline for me and Spencer.  I think that it would be so much easier if the whole family did it too (for the most part), not just him.  If it will help him and have him be not so dependent on meds, then it is worth however hard it may be, right?  I'm just afraid that beginning a diet like that would just set me, and therefore Spencer, up for failure.  General cooking is not my favorite thing as it is, yet alone a special type of it.  I feel like I need to learn more before I start anything.  But I don't want to wait forever to do something about it either.  So another question for you.  
Does anyone follow this GFCF diet?  If so, how is it for you and your family?  Know of any good cookbooks?  Any other advice on the topic?


These thoughts have been on mind a lot these days.


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9 comments:

Jill said...

Carrie - All of those medications are on the shelves in my home. Neil has asthma and so does Andee and maybe Cody. You have given me a lot to think about. I always just go back to the word of wisdom - if we are following the w.o.w. and if the food we are now all consuming was making us sick ... wouldn't Heavenly Father tell us? Add it to the list? (This is what I ask myself ... not really asking you...) Or maybe he is telling you and thats why your search went where it did? Maybe it is all individual?

Amy @ Lucky Number 13 said...

i am sorry that you and your son have to deal with such a scary disease. i have not personally had to but fel for everyone that does--how scary to watch your child struggle just to breathe.
so i have no advice at all on this subject but i am trying to remember a blog that i do/did occasionally read which might be a source of information for you. if i remember right she tried alternative meds to deal with her son's asthma as well. if i can remember i will be sure to forward you the info.

Anonymous said...

Carrie you are such a good momma. I can hear it in your questions and thoughfulness. I friend of mine in our ward here in VA has a daughter with Siliac(spelling?) disease and she is on a gluten free diet. I don't know about the dairy part. She just had a class in her home about cooking gluten free. I will get the information she handed out and send you an email.

Jesse B

Staci said...

I hate the GFCF diet, but that was when people were using it to try and cure autism. I've never heard of it being used for asthma. From what I know it is a hard diet to stick with and it can be expensive, but there are those who make it work for them. There are a lot more things in the stores to help with this diet. Cereals, cake mixes, pancakes and tons more. Good luck with it if you decide to do it.

Keri said...

Im sorry Carrie you have to deal with this. I myself have never delt with asthma but with my cancer I have seen huge improvment even remission due to a healthier diet I researched and introduced to my self and family. I beleive diet can have a huge effect on our health good and bad. If a strict diet can put me in remission and drop my cancer elvels I believe with all my might that it would do wonders for Spencer and his condition. I also beieve a 100% that if you rely on the Lord for answers search, ponder and pray the things you desire and need answers for will come in due time. Theres is much joy to be found in the journey of advirsity and challenges. Its not joy we find after the hard part has past its the rewards and blessings we find as we endure and come closer to thee as we ponder our challenges. Good luck i will keep you andspencer in my prayers for sure I know how health can be debilitating and agany. hang in there blessings are to come.

Natalie in Sparks said...

Sorry, what a pain. It might be worth it to try that diet for a month and see if there are changes. Special diets are hard, but if it really works it would be worth not having to medicate him so much. ESPECIALLY with ALL those possible side effects! WOAH, that list was crazy!
THe good news is that there is a lot more awareness of gluten and it's effects, so many products are now labeling if they are gluten free which helps you to know. Sometimes eating special is more expensive too.

Anonymous said...

Depending on how severe your son´s asthma attacks are...there are many ways to facilitate spencer breathing...the one i think is the best it to make a hot wather bath with eucalyptus essence, whick is said to have bronchodilator efect.
Also cow milk whith a spoon of honney and lemon shell makes a very nice infusion that softens the mucus and has anti inflamatory properties.

there is also a massage that helps breathing...if spencer is having trouble you should look at his belly to watch his breathing movements, and when he is exhaling you can place one hand in the upper part of the belly and onther in his chest and apply pressure to help him thow the air and the mucus out..usualy asthmatics have the most difficulty precisely when exhaling.

(sorry if my english isn´t perfect..i´m portuguese..hehe)

Anonymous said...

Oh...i wasn´t precise...the eucalyptus essence infusion is made with te essence and boiling water and spencer should breathe the steam
the milk and honney and lemon infusion is to be drinken warm..
the massage...it´s better if you are layed in a sofa or bed with him and you acompany his breathing in such a way every time he exhales you preform that mooovement..placing the hands and apply slight pressure..

hope it helps both of you to cope with this nasty illnes :)

janice said...

carrie - check out knowthecause.com. i've experienced much better health following the advice and diet guidelines this man - doug kaufmann - has written about-he has written several books too. in addition to the website & books he has a nationally broadcast show believe it's still on a pbs station but not sure. honestly if i hadn't experienced the improvements in my own health i wouldn't believe it but i DO BELIEVE your son can get better with the right nutrition...may not be easy but will be worth it!!! I KNOW FROM EXPERIENCE...i'll remember you in my prayers...